Video
Fragile X Caregiver Stories: Kara
June 26, 2025
00 h 02 m
Hear about Kara’s family’s experiences and how National Fragile X Foundation has helped them make their way.
About the Video
With Kara
Alongside Shionogi, we spotlight caregivers and their unique experiences for #FragileXAwarenessMonth. Kara always thought she would return to work after having children. Two sons with #FragileXsyndrome meant taking a different path. She chose instead to focus on advocating for her sons to get the medical services and educational support they need. Hear about Kara’s family’s experiences and how National Fragile X Foundation has helped them make their way.