Video
Fragile X Caregiver Stories: Ilana and Adam
June 26, 2025
00 h 02 m
Ilana and Adam are dedicated to advocacy as they champion for their teenage son living with #FragileXSyndrome.
About the Video
With Ilana and Adam
Alongside Shionogi, we spotlight caregivers and their unique experiences for #FragileXAwarenessMonth. Connecting with other families and being part of the National Fragile X Foundation community has given Ilana and Adam the foundation to support their son to live independently, to the best of his ability.