NFXF Webinar Series

Housing Options for Adults With Fragile X Syndrome

November 2, 2022

01 h 05 m

Guided by moderator Jayne Dixon Weber, our three guests — Dushawn Powell, Anita Inz, and Susan Buchanan — discuss adult housing for individuals living with developmental disabilities from the perspective of parents and social workers.

About the Webinar

With Dushawn Powell, Anita Inz, and Susan Buchanan
Learn more about the presenters

Parents and caregivers have found it challenging to find suitable housing for adults with learning or developmental disabilities. Affordability, accessibility, and discrimination are just some of the many issues that have turned the issue into a national crisis.

On the housing side, organizations face challenges with policies and regulations, the diverse needs and levels of independence of their tenants, aligning services with employment opportunities, managing transportation, and more.

Adult services may be limited and difficult to access, so how does a parent deal with that nagging question that keeps them up at night: What will happen when I’m gone?

Personal Stories and First-Hand Experiences

Before the live webinar, we asked each of the presenters to prepare a video about their housing options. We then asked registered attendees to review them prior to the live webinar so they could prepare their questions, which they discuss in the video.

These are the videos shared with attendees, and where you can find more in-depth information on each housing option from each of our presenters:

Susan Buchanan

Susan describes her process for setting up a group home for her son Reese. The group home is their existing home.

Anita Inz

Anita discusses POINT , where her son is currently living. Founded in 2008 by 15 families and two collaborating agencies, POINT supports adults ages 21 and older with developmental and learning disabilities to live independently in apartments located throughout downtown White Plains, New York. She shares an overview of the history and current status of POINT.

Dushawn Powell

Dushawn is the director of Hearts & Minds Inc. , a residential facility for people with developmental disabilities, located in southern California.

About the Moderator

Jayne Dixon Weber

Jayne served as the NFXF director of community education (and other positions over the years) from 2007 to 2023. She has two adult children, a son with Fragile X syndrome and a daughter. Jayne is the author of Transitioning ‘Special’ Children into Elementary School, co-author of Fragile X Fred, and editor of Children with Fragile X Syndrome: A Parents’ Guide. Jayne likes to read, enjoys photography, and goes for a walk every day.

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