Update from Shionogi on EXPERIENCE Fragile X Clinical Trial

Anna De Sonia
Anna De Sonia

04 mins read

Shionogi, Inc., released updates from EXPERIENCE-301, the adult study in ages 18–45, and EXPERIENCE-204, the adolescent study in ages 9–17. Please read their full letter and watch the community Q&A session hosted by the NFXF, FRAXA, and Shionogi, recorded on May 19, 2026.

About the Author

Anna De Sonia

Anna joined the NFXF team in 2024. She has many years of research experience, starting out as a clinical research coordinator at Rush University Medical Center in Chicago, IL back in 2010. There she worked on a variety of clinical trials in the pediatric neurology division, specializing in Fragile X research.