Jayne Dixon Weber
Jayne served as the NFXF director of community education (and other positions over the years) from 2007 to 2023. She has two adult children, a son with Fragile X syndrome and a daughter. Jayne is the author of Transitioning ‘Special’ Children into Elementary School, co-author of Fragile X Fred, and editor of Children with Fragile X Syndrome: A Parents’ Guide. Jayne likes to read, enjoys photography, and goes for a walk every day.
More from the Author
How to make children with Fragile X syndrome comfortable at your next dinner party or BBQ. Birthday parties are another topic altogether.
We have gathered information to help you make the most of your online telehealth visit for your child (of any age) with Fragile X syndrome. While we focus on visits with a Fragile X clinic, the information also applies to telehealth appointments with a primary care doctor or other health professionals.
Following a functional behavior assessment, Jayne Dixon Weber shares how she worked with her son’s teacher and set up a detailed schedule to manage his aggressive behavior
The same thing you do every other day, except, at least initially, it will be more like a weekend day. Some of the strategies you use when you go on vacation can used here. Trust me, I know this is not a vacation.
Read one mother’s story and her words encouraging you to keep at it with your child — brushing their teeth, taking them to the dentist, finding a dentist who is willing to work with you, and using general anesthesia if you need to.
Jayne Dixon Weber shares the many lessons her son with Fragile X syndrome has taught her family over the years, beginning with the day of his diagnosis
Author Jayne Dixon Weber decided to make some changes after a couple of years of meetings with teachers, psychologists, and administrators, during which she was handed a “draft” IEP when she walked in the door. This is her IEP story.
