Pia Muro

What makes Pia Xtraordinary to you?

Pia is our third child, following her middle brother Giorgio “Jojo” who is full mutation FXS. Pia is our “Mosaic” Girl. We call her Pia Pie because she’s such a sweetie. Loving, Happy, Wild! She keeps her brothers and us on our toes!

Special Facts:

Loves Baby Shark, Loves Frozen, Loves Play-dough. Her favorite animal is a fish.

How has the NFXF helped you and your family?

It’s helped to connect to families similar to ours. My son Giorgio was the first diagnosed case of FXS in our family, NFXF has helped me stay strong for Jojo and Pia.