Nazar
Nazar was nominated by his parent, Yevhenia Kolbaieva
What makes Nazar Xtraordinary to you?
Nazar taught our family what true unconditional love is. It is easy to love children who are smart and mature for their years. It’s another matter when a family faces many difficulties in development. My son Nazar has shown me a world of unconditional love. Taught me to be strong, to not give up, to move forward no matter what.
Nazar is a very kind, smiling, active boy. In his 4 years Nazar knows how to ride a two-wheeled bicycle, rollerblades, skis, and now wakeboarding has conquered his heart. But it was not always so. Nazar was born very weak, he had low muscle tone. He sat up at 1 year 1 month, started walking at 1 year 10 months. He was very clumsy. His motor and mental development was very far behind. Our family has made and is making many efforts for Nazar’s development.
How has the NFXF helped you or your family?
We have just begun our journey into the world of fragile X, our family believes that gene therapy will be invented.