Miles
Miles was nominated by his mother, Alexandra German
What makes Miles Xtraordinary to you?
Miles delights in life’s simple pleasures and inspires the same fun-loving attitude in all those who come to know him. His progress is measured by perseverance, not comparison. Though his milestones may look different or be achieved on a slightly different timeline, every skill he gains is built on resilience and effort. Miles is forging his own path, and constantly changing the hearts and minds of those around him. He has a wonderful team of family, friends, and practitioners around him who believe deeply in his potential. We love our sweet Miles more than words can say. His father and I are beyond proud of him and all he’s achieved in his almost-two years of life.
Special Facts
- Miles’ favorite food is salmon 🍣
- His favorite song is Barney’s “If All the Raindrops” 🦖
- And his favorite activity is swimming 🏊♂️
How has the NFXF helped you?
NFXF made the early days of diagnosis seem a lot less daunting and lonely, and has made it possible through some reimbursement benefits for us to travel to out-of-state clinics to participate in specialized research.