Megan Taylor
Megan was nominated by her mother, Susie Taylor
What makes Megan Xtraordinary to you?
Megan is one of the most loving, gentle, and caring people I know. Her heart is what defines her. She has taught me patience, empathy, and what it means to care. She notices things others miss. If someone is in need of a hug, she knows it and gives them one. Her love is honest and wholehearted. She may experience the world differently from some of us, but she experiences it deeply.
Special Facts
- Spaghetti.
- Music.
- Her newfound love of reading.
- And of course Justin Bieber.
How has the NFXF helped you?
Megan and I have been to two national conferences. We have made lifelong friends with some of the same issues she has. We have learned from the website how to help her navigate through life with FXS, and have shared it with our GPs.
The NFXF has helped my family and me with diagnosing myself, my sisters, my daughter, and my nephews. The insurmountable amount of information NFXF has available is amazing. You guys are great!