Ben Smith
Ben was nominated by his mother, Breea Smith
What makes Ben Xtraordinary to you?
Ben is one amazing boy! If you know him, you can’t help but love him. He is joyful, he is loud and chatty, he is a helper, he is silly, and he loves to give high-fives and tell funny jokes. He lives with Fragile X syndrome and is thriving. He battles anxiety every day, but he doesn’t let it stop him from enjoying life! He meets life with the biggest smile and loudest laugh you have heard. He is a loyal friend and is passionate about baseball and his golden retriever dog! He loves to share laughs with his sister Lydia and brother Jacob. He is an Xtraordinary boy and we are proud to call him our son!!
Special Facts
- He loves the color green and loves the Texas Rangers!
- He never leaves home without his stuffed animal, “Froggy!”
How has the NFXF helped you or your family?
Through NFXF, we have been able to join several clinical trials and have been able to meet yearly with Fragile X specialists.