Jayne Dixon Weber

What makes Jayne Xtraordinary to you?

My sister Jayne is Xtraordinary to me in so many ways. Jayne has devoted her life to her son, Ian, and Fragile X. First and foremost her outstanding love and care for her son Ian. Jayne defines patience, unconditional love, and perseverance. I know there are wonderful days and there are hard days. But, Jayne knows that structure and organization are key to Ian’s success. She and her husband are the heart and soul of Ian’s kindness and generosity. Because of Jayne’s inclusive spirit, Ian is well known to the Boulder [Colorado] community. He has many friends in the fire department (his favorite), at CU, King’s Super, mail carriers, and garbage collectors. Ian is always looking for his friends to give them their favorite drink. Jayne’s other Xtraordinary quality is her dedication to Fragile X. Jayne works with so many families on their journey into the Fragile X world. Families with new diagnosis are going through a range of emotions and Jayne is there to support them through every step of the way. This is a perfect role for her. She is living it with her son, she has a strong rapport with the Fragile X team, and she is constantly researching and looking for ways to improve the quality of life for those affected by Fragile X.As a young girl growing up in Kansas City, I know Fragile X was not part of her future plans. But, in true Midwest fashion, she took the bull by the horns and faced it head on. Jayne doesn’t look for sympathy, she looks for the next adventure with Ian. Love you Jlizabeth!!!