Jaden Randels and Kacie Coleman

What makes Jaden and Kacie Xtraordinary to you?

Jaden and Kacie are Xtraordinary to me because they came with me to Advocacy Day 2020 as sibling advocates. We had three meetings set up with representatives from our state. During the first meeting, I did most of the talking… however, they quickly took the lead and impressed me with their conversations with state representatives. Jaden and Kacie were very articulate and talked about the joys of having a sibling with full mutation FXS and also the challenges. I was and am so proud. They are Xtraordinary sibling advocates!