Annie Ruth Sankey

What makes Annie Ruth Xtraordinary to you?

That we know of, eight members of my extended family are either premutation carriers or have Fragile X syndrome. None of us would know if it were not for Annie Ruth. Through prenatal screening through my pregnancy with Annie, we accidentally uncovered Fragile X in our family, and have unlocked a whole world of questions, answers, therapies, and challenging decisions. But in the midst of all this, Annie is, as one of her preschool teachers says, “a literal ray of sunshine” dishing out smiles and giggles everywhere we go. I like to say that her essence is rainbows and sunshine, and she dresses accordingly. Her curiosity and growth delight us every day, and she makes all of our lives Xtraordinary!