On Tuesday, July 22, the Rhode Island State House held a special lighting called Lighting the Way for Fragile X in honor of National Fragile X Awareness Day. And, of course, all of the Little Rhody Warriors were there!
Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 10th Annual Bike To X Out Fragile X on Saturday, June 7, 2025, in Des Moines, Iowa.
Yet again, this year’s fundraiser was the most successful yet, with a record 35 teams — making it the first time they filled all available holes with teams!
Little Rhody Warriors families held their second annual “Fragile X Awareness Walk” on May 18 in Warwick, Rhode Island. More than 50 family members, caregivers, and friends participated in this X Strides event.
Rhode Island families gathered for a night out at a local restaurant on April 12th to share experiences and stories.
The Greater Chicago Fragile X chapter held their “X Strides with Greater Chicago” event on July 13 in Glenview, Illinois. More than 50 families and caregivers participated including heading to the park splash pad to cool off afterward.
Families for Fragile X held their first “Fragile X Walk” event on July 20 in Warwick, Rhode Island. More than 50 family members, caregivers, and the general public participated their first X Strides event.
The Haugen’s third Fragile X Christmas Party was another smashing success. Their fundraising goal was $25,000, and they raised a whopping $36,420.
The annual Fishing for a Cure fundraiser, hosted by Joey Christoff in honor of his son Mitchell, was another great success in 2024! Check out the big fish and the big smiles.
More than 50 friends and supporters gathered on September 29 to eat great food, taste various wines, bid for prizes, and raise awareness and funds to support the Fragile X community.
Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their ninth annual Bike To X Out Fragile X on Saturday, June 1, 2024, in Des Moines, Iowa.
Organized by the Western Massachusetts Fragile X chapter this event brought together 26 competitive teams and 150 attendees and raised $4,000.
The Haugen’s second annual Fragile X Christmas party gathered nearly 100 guests for music, food, and drinks while learning more about Fragile X.
NFXF Greater Chicago Chapter hosted and organized two local events to bring together families living with Fragile X syndrome.
Organized and hosted by Andrea and Kevin Marner, the 3rd Annual Quad Cities Fragile X Golf Outing on June 25, 2022, at the Byron Hills Golf Course in Byron Hills, Illinois, was a huge success
If you’re looking for fundraising ideas, consider these suggestions from Joey Christoff, who recently hosted his fourth “Fishing for a Cure” fundraiser.
The Western Massachusetts chapter hosted an evening of wine tasting, appetizers, a silent auction, and hand-roasted coffees for non-wine drinkers.
Nine friends chipped in to enjoy six days of fishing, golf, tennis, swimming, zip-lining, biking, the beach, and anything else on the island. Everyone was able to enjoy time away and donate to support community, awareness, and research for Fragile X families.
