NFXF Webinar Series

What Weʼve Learned from FORWARD About Aging in Fragile X Syndrome

01 h 27 m

Dr. Berry-Kravis joins us to discuss what we’ve learned about the problems that face adults living with Fragile X syndrome from participation in the FORWARD database.

About the Webinar

With Dr. Elizabeth Berry-Kravis
Learn more about the presenters

Dr. Berry-Kravis reviews the enrollment of adults in the database, including age. Dr. Berry-Kravis reviews the enrollment of adults in the database, including age ranges and other data we have learned so far about what adults are doing in their community and their living situation. We also talk about how families of adults can contribute to FORWARD (and now FORWARD-MARCH) and our understanding of adults with FXS.

About the Panelists

Elizabeth Berry-Kravis

Elizabeth Berry-Kravis, MD, PhD, established the Fragile X Clinic and Research Program at Rush University Medical Center in 1992. She studies Fragile X syndrome medical issues, epilepsy, and psychopharmacology and provides care to over 700 patients with FXS. She has been a leader in translational research, including the development of outcome measures and biomarkers, natural history studies, newborn screening, and particularly clinical trials of new targeted treatments.

Dr. Berry-Kravis’s laboratory studies the cellular roles of the Fragile X protein (FMRP), its relationship to phenotypes, and the optimization of genetic testing methods. She is a longstanding member of the NFXF Scientific and Clinical Advisory Committee, and Clinical Trials Committee, and is the principal investigator of the CDC-funded FORWARD-MARCH natural history project for Fragile X.

Dr. Berry-Kravis attended the University of Notre Dame for her undergraduate studies and the University of Chicago for her doctoral degrees (MD and PhD) and training in pediatric neurology.