About the Presenters
Carly Dolan
Carly is a female self-advocate with the full mutation of Fragile X and an advisor on the NFXF Advisory Committee on Inclusion. Carly attends Longwood University to study public relations (communications).
Jill Dolan
Jill and her husband, Bill, are the proud parents of two daughters. Carly (full mutation) is a self-advocate board advisor and peer mentor through the Arc of Virginia. Sophie is in college and is actively involved in her university’s Best Buddies chapter.
Jill has degrees in early childhood development and education, English/journalism, and a master’s in applied behavioral science. She has worked as director of corporate-based child care centers and the early childhood program director at the Children’s Museum of Richmond. She has facilitated numerous teacher and parent workshops. Jill is proud to be a board member and eager to do whatever she can to support the Fragile X community in creative and helpful ways.
David Tillman
David Tillman is the proud parent of three wonderful human beings — Miles, an 8-year-old living with Fragile X syndrome, and his two adult sibling advocates, Mary Haven and Teagan. Miles and David enjoy playing musical instruments, singing show tunes as loudly as possible, and hiking nearby Raven Rock State Park.
David is the chair of the Department of Public Health at Campbell University, and his professional career is focused on health equity and innovation. He has served on the Executive Council for Disability and Health with the American Public Health Association and has published and presented on a variety of topics related to inclusiveness and equity in health care.
In the Fall of 2020, David created the Xtraordinary Miles Campaign and ran a marathon completely barefoot to raise awareness of Fragile X syndrome and raise funds for NFXF. In Fall 2022, he repeated the effort and ran an ultramarathon. Prior to joining the NFXF Board of Directors, David was already involved with the foundation, participating in Advocacy Day, attending the International Fragile X Conference, serving as a consumer reviewer representing NFXF for the Congressionally-Directed Medical Research Program, and as a parent advocate during the Patient-Focused Drug Development Meeting with the FDA.
“The National Fragile X Foundation immediately connected me to a supportive community from the first moments of learning of Miles’ diagnosis … joining the board is an opportunity for me to contribute to strengthening this community as we share stories, share resources, share research, and work toward a better future for folks affected by Fragile X.”
Tamaro S. Hudson
Tamaro S. Hudson, PhD, is an associate professor of pharmacology at Howard University College of Medicine. Dr. Hudson is a molecular pharmacologist with expertise in cancer, natural products, molecular biology, and pharmacogenetics. He has integrated his research focus by identifying novel signature biomarkers with the evaluation of new chemopreventive cancer strategies, which have been evaluated in Phase I and Phase II clinical trials. His expertise in cancer-related processes, specifically mitochondrial health, which is critical in neurodegenerative diseases, has allowed him to transfer these skills to Fragile X-associated tremor/ataxia syndrome (FXTAS). Currently, his lab assesses the biological activity of natural compounds on mitochondrial health in FXTAS. His research interests continue to expand in order to build collaborations across broad disciplines.
Dr. Hudson served on the board of the Maryland Fragile X Resource Group. His personal experience with this syndrome and current research interest in FXTAS led Dr. Hudson to join the advisory committee for the International Fragile X Premutation Registry.
