Jacquelyn and her husband, Paul, are the proud parents of two children, Maya and Paul III, both of whom were diagnosed with Fragile X syndrome. When her son was diagnosed in 2002, Jacquelyn sought as much information as she could find. One of the first resources she discovered was the book Children with Fragile X Syndrome: A Parents’ Guide by former NFXF team member, Jayne Dixon Weber. It is a book that she still cherishes today. After learning more about Fragile X premutation conditions at her first NFXF International Fragile X Conference in San Antonio, Jacquelyn decided to get tested to determine her number of CCG repeats. She was surprised when she found out that she, too, has the full mutation Fragile X syndrome.

Jacquelyn and her family became involved with the NFXF Houston Chapter in 2013, and since then have participated in many local events and fundraisers, and attended NFXF Advocacy Day and International Fragile X Conferences. Jacquelyn has worked as a workers’ compensation administrative law judge for the state of Texas for the past 15 years. She is motivated by the desire to raise awareness in the community at large about Fragile X syndrome, to help underrepresented people gain better access to clinical trials, and to help self-advocates have a better future.