Amie Milunovich
Amie joined the NFXF in 2015. She holds a bachelor’s degree in family and consumer science and is a SOCRA-certified clinical research professional (CCRP). Amie has over 15 years of experience working in clinical research. She enjoys Bikram yoga, painting, cooking, and spending time with family and friends.
More from the Author
This research looks at social participation in children with Fragile X syndrome, including key barriers, gender differences, and practical ways families, schools, and communities can support inclusion and engagement.
This research looks at how a child’s level of intellectual disability (ID) — meaning how much their thinking and learning abilities are affected — relates to the types of behavioral challenges they experience if they have Fragile X syndrome (FXS).
We’re on a mission to enroll 600 participants with FXS born in 2003 through 2020. We’re halfway there and we need your help!
More research needs to be done, but knowing more about how FXS differs in people with and without methylation mosaicism may eventually help guide the expectations and treatment of individuals with FXS.
Findings showed that sleep difficulties are prevalent in children with FXS and, although they tend to be mild, they are associated with behavioral problems and negative impact to families.
These findings provide preliminary information about the early language learning environment and support for the feasibility of utilizing an automated vocal analysis system within the FXS population that could ease data collection and further our understanding of the emergence of language development.
