The Fragile X Clinical & Research Consortium (FXCRC) was created in 2006 in response to the growing needs of families whose members have one of the three identified Fragile X conditions—Fragile X syndrome (FXS), Fragile X-associated tremor/ataxia syndrome (FXTAS), and Fragile X-associated primary ovarian insufficiency (FXPOI). Each Fragile X Clinic is staffed by knowledgeable specialists experienced in the evaluation and treatment of all the conditions.
FORWARD, which stands for “Fragile X Online Registry With Accessible Research Database,” was created to increase the scientific and clinical understanding of Fragile X syndrome. The registry is open to all Fragile X disorders, while the database is open only to those affected by Fragile X syndrome.
The NFXF Biobank™ is the first major project of the NFXF Collaborative Biomarker Research (CBR) Program. The program is designed to drive faster and more cost-effective research into treatments and eventual cures for the family of Fragile X disorders.