Kara Frech

What makes Kara Xtraordinary to you?

Kara has been an exceptional mother and Community Support Network leader who goes above and beyond. She is a “mover and shaker” who organizes so many activities and fundraisers for our Fragile X community. Two phenomenal X strides walks, bowling and baseball games, mother’s night out, and educational seminars are just a few of her accomplishments.—Barbara Haas-Givler, Director, Education and Behavioral Outreach & Clinic Director, Geisinger Fragile X Clinic

I’d like to nominate an absolutely awesome mother — my niece — Kara Frech, and her husband, Steve. Her boys Andrew (16) and Jason (13) have the very, very best advocates for them. Kara educated their teachers about Fragile X from the time they were very young. Their everyday schedule, school days, recently on-line through virtual classes — is always right on. She keeps up — above and beyond their needs and works tirelessly with the Fragile X community in arranging get-togethers, X Strides for SE PA [southeast Penn.], advocating in Washington, DC, for funding, and seeks out any new opportunities that are available to help Andrew and Jason.—Josie DiSciascio, Kara’s Aunt

Kara is Xtraordinary in many ways. She is has been a remarkable advocate for her two sons, Andrew (16 years) and Jason (14 years) ever since learning of their FX diagnosis. Kara is a leader of the Southeastern PA chapter. She has organized two X Strides events that raised money for the organization. She is always available to assist families who are new to the process of trying to get assistance and services for their children. She organizes events, such as, Moms’ Night Out and bowling for social activities. She has worked to bring in speakers and set up information sessions regarding clinical drug trials in the area. Kara has attended Advocacy Days in Washington, DC, for many years, both by herself and with her boys. She and her family have attended the FX conferences. This year she participated in some of the virtual sessions.She and her husband, Steve, are actively involved in the local baseball and basketball special needs teams. She makes sure that her boys are included in as many activities with sports or social groups as possible. She is active on social media for Fragile X awareness and fundraising.Kara continuously works with Andrew and Jason to help them to be as independent as they can be. She advocates for them with the local school administrators, teachers, and aides to be sure that they receive proper assistance and schooling for their levels.I can’t think of a better person to receive recognition for her Xtraordinary efforts.—Rita Morley, Kara’s Mother