Joe

What makes Joe Xtraordinary to you?

Joe is kind, funny, and sweet AND he is the best big brother to Gus. Gus has FXS and Joe helps him everyday. He’s learned how to use his AAC device, plays nerf guns with him, and tells Alexa to play Gus’s favorite music.

Special Facts

Joe loves the color red, Minecraft, and macaroni.

How has the NFXF helped you and/or your family?

It’s been a great way to connect with others and have access to research and information.