Isaiah Roque

What makes Isaiah Xtraordinary to you?

Isaiah is so full of life and has taught me and the rest of his family how to embrace our uniqueness as humans. He keeps learning new things each day and he doesn’t let Fragile X slow him down. He’s always eager to be a part of any new trial study that can help others like him who have Fragile X. He recently broke his leg and has been confined to a wheelchair for the last 3 weeks but he hasn’t let that stop him. He’s learned how to navigate a wheelchair like a champ and still has managed to keep his positive outlook on life.

Special Facts:

His favorite activity is going to monster truck shows. His favorite truck is Grave Digger. He also enjoys riding on the side-by-side through our local mountains. He loves nature. His favorite person is his papaw Tim. They are best buddies and Isaiah loves spending time with him and doing fun activities with his papaw.

How has the NFXF helped you and/or your family?

We have learned so much about Fragile X and have been able to learn about the many medical advances that have been made over the years and the many advances that are in the works now and soon to come as well.—Sandra Maggard