Heather

What makes Heather Xtraordinary to you?

We are both mothers for two adults with FXS. Heather is an inspiration to me. She has the gift of compassionate, no nonsense love for all.

Special Facts

In moments, Heather has the ability to put at ease a room full of children. She loves to be organized. She received the Compassionate People Award 2022-2023 from the Schenectady, NY school district.

How has the NFXF helped you and/or your family?

NFXF has been a lifeline form our family, especially as we transition to adulthood. Whenever we have needed support, we have receive prompt and personal responses.