Greg Renn

What makes Greg Xtraordinary to you?

My dad is the sweetest person I know. He has been dealing with tremors for a good 20 years and then was diagnosed with FXTAS after he found out about his grandkids having FX. He doesn’t complain though. He has tried all of the weighted silverware and weights for your wrists. He has glasses and hearing aids. He has every right to be an angry person, but he isn’t. Everyone has their moments, but he is always smiling and taking it day to day. The coolest thing I think he has for an assisted devise is his Obi. It feeds him so he can sit with mom at the table and she doesn’t have to do it. This robot has been a game changer with eating. My dad is giving, empathetic, wild, and the best grandpa to his two grandkids. Dad loves being with family, sitting outside watching the birds, having a good cigar, and having a conversation with anyone. He has been married for 46 years to a strong, patient, glorious woman. Mom is his caregiver and even though it’s not what anyone wanted, they stride to make their lives the best they can. My dad is my hero. He takes on the day with ambition, desire, determination, and kindness.

How has the NFXF helped you and/or your family?

We have been involved for 14 years and they have helped with information, research opportunities, family connections, and conferences.