Deby Burgess

What makes Deby Xtraordinary to you?

Deby Burgess is the world’s greatest advocate for Fragile X. Her son John David has Fragile X syndrome and since his diagnosis when he was a baby, she has immersed herself in the Fragile X community, gathering all the information available and sharing this information with anyone needing it. She has been a wonderful source of comfort and information to many, but especially to our family as our daughter is a permutation carrier. Deby has worked hard on Becca’s behalf to make sure she is as informed as possible. Giving her hope and comfort. Deby Burgess is absolutely one of the most Xtraordinary people I know.