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Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July, Fragile X Awareness Month, but feel free to start early or hold your walk or gathering anytime! You can register as an individual, start a team, or join an existing […]
Join us at the Rhode Island State House on Wednesday, July 22, 2026, for National Fragile X Awareness Day! Our beautiful State House will light up in teal to raise awareness of Fragile X Syndrome. Lighting sponsored by State Representative Thomas E. Noret. Location: Rhode Island State House 82 Smith Street Providence, RI 02903 When: […]
Join us at Warwick City Park for a morning of fun to bring awareness to Fragile X Syndrome! We will have fun activities for kids and adults. Enjoy a bounce house, refreshments, and more! Contact us at fxslittlerhodywarriors@yahoo.com if you have any questions. When: July 25, 2026 @ 10 am (all day) Location: Warwick City […]
Swirl, smell, and sip your choice of 50 wines plus appetizers from Esselon Cafe, all while supporting families living with Fragile X! When: September 27, 2026 @ 5 PM to 7 PM Location: Esselon Cafe @ 99 Russell Street, Hadley, Mass. The evening will also include delicious appetizers, a silent auction, and fantastic door prizes […]
Please join the Cincinnati Fragile X Research & Treatment Center, including Dr. Erickson, Dr. Reisinger, and our new Family Support Lead, Hannah Sachs, to provide input on our research and clinical activities. We value everyone's input and appreciate your voice in shaping the future of our Fragile X program! Your voice matters! Join us to […]
Cincinnati Fragile X Research and Treatment Center presents its annual friends-and-family picnic. Join us for connection, food, and fun times! Location: Weston Shelter at Woodland Mound 8250 Old Kellogg Road Cincinnati, OH 45255 When: October 3 @ 12:00-3:00 EST RSVP: hannah.sachs@cchmc.org
Join us as we test our knowledge of Scary and Not-So-Scary Movies in a game of Scary Movie Jeopardy! Costumes Encouraged! BYOC (Bring Your Own Candy)! Contact Diane Southard at southard5@sbcglobal.net for more information.
This webinar brings together Fragile X researchers who are dedicated to research focused on females living with Fragile X syndrome. Hear from these incredible presenters as they share their research, emerging findings, and ongoing work in this important and understudied area. Learn why research focused specifically on females with FXS matters, what we’re discovering, and […]
Save the date for our next NFXF Advocacy Day. What is NFXF Advocacy Day? NFXF Advocacy Day is an annual event where members of the Fragile X community come together in Washington, DC, and meet with members of Congress and their staff. Advocates share their stories, educate lawmakers, raise awareness, and present our collective Asks, […]
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