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Come play corn hole for registration fee $40 per two, free food! Registration 12pm, play starts at 1pm. Huge raffle starting at 1 pm all are welcome to buy tickets, check the Facebook event page for pictures of prizes.
The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Tools & Tactics for Anxiety We have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about anxiety: Rebecca Shaffer, Debra Reisinger, Nicole Tartaglia, and Jane Roberts. We anticipate topics to include talking about what anxiety is, go-to […]
Dillon and Kelley will introduce our "mystery" guest(s) from the Fragile X Community. We will reveal in April who the guest(s) are via Facebook. They will ask some fun questions. Our guest(s) will share some information then everyone will also have the chance to share. Our guest(s) will then close out our hour (before closing […]
The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Health, Wellness & Fertility We have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about health, wellness, and fertility: Vicki Wilkins, Deby Barbouth, Heather Hipp, and Makenzie Woltz. We anticipate topics to include talking about health and […]
Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation, this webinar will feature Shionogi discussing the recently shared trial results, what is known so far, and what comes next. The webinar will be recorded and made available shortly after […]
Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July, Fragile X Awareness Month, but feel free to start early or hold your walk or gathering anytime! You can register as an individual, start a team, or join an existing […]
There are nine dates between October 2025 and June 2026 in this monthly virtual get-together for dads, hosted by the NFXF Connecticut Chapter. You do not need to be a chapter member — all are welcome! They each run from 7:30 through 10:00 pm (ET), but youʼre welcome to join when you can and stay […]
Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! When: Saturday, July 11 at 9 am. What: Walk or ride Where: 2500 Chestnut Ave Glenview, IL 60026 WHY: to support the National Fragile X Foundation to provide knowledge, resources and tools for all families impacted by […]
Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.
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