Conference Presentation

How Many Times Is He Going to Ask That? Perseverative Questioning and Other Behavioral Inflexibility in FXS

00 h 47 m

Studies indicate over 80% of individuals with Fragile X syndrome demonstrate behavioral inflexibility. Behavioral inflexibility is likened to being stuck — a state in which the individual is unable to move on from a current behavior or thought. In FXS, individuals often become stuck in a repetitive loop of behavior, often impeding daily functioning, creating barriers to learning and social interactions, and ultimately worsening long-term outcomes.

About the Webinar

Presented by Lauren Schmitt, PhD
Learn more about the presenters

In this presentation we discuss feedback from focus groups with family members, caregivers, and self-advocates regarding behavioral inflexibility in FXS as well as tips and tricks to help manage behavioral inflexibility.

Additional Resources

Behavior & Fragile X Syndrome

When discussing Fragile X syndrome and behavior, it is important to note that — like every person — the focus should be on the individual. Many behaviors are positive, and it is those behaviors you will see most often in addition to challenging behaviors. Behavior problems serve a purpose (or a function) and are often a form of communication. Addressing behavioral challenges in an individual with FXS should start with a comprehensive evaluation. A proactive approach with appropriate support and accommodations will likely foster positive outcomes and set up the individual with FXS to succeed in their home, school, or community.

About the Speaker

Lauren Schmitt, PhD

Cincinnati Children’s Hospital Medical Center
Assistant Professor

Dr. Lauren Schmitt is a licensed clinical psychologist with extensive training in cognitive functioning in individuals with neurodevelopmental disorders. Since joining the Fragile X Research and Treatment Center at Cincinnati Children’s Hospital Medical Center over four years ago, she has had critical involvement in the current and past federally-funded U54 FXS Center, focused on identifying clinical correlates of neurophysiological biomarkers and characterizing potential subgroups of drug responders. In addition, her K23 Patient-Oriented Mentored Career Development Award focuses on identifying translational biomarkers of higher-level functioning, including speech production and cognitive flexibility, that can be used across mice and men.