Robby Miller, Director, Clinic & International Relations at the National Fragile X Foundation, has been affiliated with the NFXF since 1999 and has spent over 50 years helping children with special needs, their families, and the professionals who work with them. He first became a part of the Fragile X community when close friends had two children with Fragile X syndrome. Robby is particularly interested in how families learn about, access, and receive meaningful care and services. This interest led him to co-found the Fragile X Clinical & Research Consortium. In his spare time, you’ll find Robby singing and playing rhythm guitar in a band with his long-time musical partners.

Jayne Dixon-Weber served as the NFXF director of community education (and other positions over the years) from 2007 to 2023. She has two adult children, a son with Fragile X syndrome and a daughter. Jayne is the author of Transitioning ‘Special’ Children into Elementary School, co-author of Fragile X Fred, and editor of Children with Fragile X Syndrome: A Parents’ Guide. Jayne likes to read, enjoys photography, and goes for a walk every day.