Rachel and her husband, Brian, founded LivJoy in 2023 to find, fund, and share programs that enable girls with Fragile X Syndrome to live full, joyful lives. It is the landing point they wished they’d had when searching for answers for their family of girls with Fragile X; they want to help families at all stages of diagnosis and life find both resources and reassurance that others are going through the same experience. The LivJoy Foundation is dedicated to finding and funding resources that enable girls with Fragile X Syndrome to live a life full of joy.