Jen is a registered nurse with 20 years of experience in the emergency department and am currently finishing my Doctor of Nursing Practice degree as an Acute Care Nurse Practitioner. She is a mom to three amazing kids—Nate (17) and Rylee (16), who both have Fragile X syndrome, and Finley (9)—along with their beloved Goldendoodle, Bristol (7). Jen’s family received their Fragile X diagnosis in 2010, shortly after Rylee was born. Like many families, they were suddenly faced with a lot of questions and uncertainty. She quickly connected with the National Fragile X Foundation (NFXF), which became an invaluable source of education, support, and community.

Wanting to give back and help other families navigate their own journeys, Jen became a Community Support Network Leader and later joined the NFXF team in 2019. Her experiences as both a parent and healthcare professional have fueled her passion for advocacy, education, and supporting individuals and families affected by Fragile X syndrome.

Outside of work and advocacy, Jen serves on the board of the Rochester Raiders Booster Club, which supports varsity adapted athletics. In her free time, you can usually find her biking, hiking, boating, gardening, reading, playing softball, or cheering on her kids as they participate in their many activities.