NFXF Blog
Featured
Congratulations to 2025’s three NFXF Summer Scholars. Meet Susana Lopez-Ignacio, Tanvi Kamra, and Shelby Dauterman!
Little Rhody Warriors Light the Way for Fragile X
01 min read
Moshi Moshi Sushi Fundraiser
A Fresh Approach: CONNECTA Therapeutics and Fragile X Syndrome
03 mins read
Update on Harmony Biosciences Fragile X Study: Questions You Have, Answers We Can Give
04 mins read
All Articles
We’re thrilled to spotlight a major new review article recently published in the New England Journal of Medicine (NEJM) – The Spectrum of Fragile X Disorders by Randi J. Hagerman and Paul J. Hagerman.
We are seeing numerous proposed changes this Congress that would have a significant impact on the Fragile X community. It’s more important than ever that your members of Congress hear directly from you — your voice matters.
We understand the uncertainty surrounding recent developments, especially potential changes to federal funding that could impact the Fragile X community. We closely monitor the situation and continue working with our strategic partners to stay informed.
We know many individuals living with Fragile X want to work, and though some do, not everyone who wants a job has found one that best fits their strengths and skill sets. We’re determined to help you educate yourself on the existing supports and how to best advocate in the workplace.
American Idol featured Sophia’s relationship with her brother James, who has Fragile X syndrome. The show reached 8.05 million viewers.
