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The NFXF & LivJoy Foundation Present Females with Fragile X Syndrome Webinar Series: Health, Wellness & Fertility We have assembled an incredible multidisciplinary panel to address specific questions from families and self-advocates about health, wellness, and fertility: Vicki Wilkins, Deby Barbouth, Heather Hipp, and Makenzie Woltz. We anticipate topics to include talking about health and […]
Join us for a community update on the EXPERIENCE clinical trial program in Fragile X syndrome. Hosted by FRAXA and the National Fragile X Foundation, this webinar will feature Shionogi discussing the recently shared trial results, what is known so far, and what comes next. The webinar will be recorded and made available shortly after […]
Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! We focus our awareness efforts during July, Fragile X Awareness Month, but feel free to start early or hold your walk or gathering anytime! You can register as an individual, start a team, or join an existing […]
There are nine dates between October 2025 and June 2026 in this monthly virtual get-together for dads, hosted by the NFXF Connecticut Chapter. You do not need to be a chapter member — all are welcome! They each run from 7:30 through 10:00 pm (ET), but youʼre welcome to join when you can and stay […]
Join us for this year’s X Strides to raise awareness and funds to support the Fragile X community! When: Saturday, July 11 at 9 am. What: Walk or ride Where: 2500 Chestnut Ave Glenview, IL 60026 WHY: to support the National Fragile X Foundation to provide knowledge, resources and tools for all families impacted by […]
Save the date! Additional information will be added as it becomes available. Also see the NFXF International Fragile X Conference main page.
Join us at the Rhode Island State House on Wednesday, July 22, 2026, for National Fragile X Awareness Day! Our beautiful State House will light up in teal to raise awareness of Fragile X Syndrome. Lighting sponsored by State Representative Thomas E. Noret. Location: Rhode Island State House 82 Smith Street Providence, RI 02903 When: […]
Join us at Warwick City Park for a morning of fun to bring awareness to Fragile X Syndrome! We will have fun activities for kids and adults. Enjoy a bounce house, refreshments, and more! Contact us at fxslittlerhodywarriors@yahoo.com if you have any questions. When: July 25, 2026 @ 10 am (all day) Location: Warwick City […]
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