Hear about Denise’s hope for greater awareness and acceptance of Fragile X syndrome in our video series, created with Shionogi.
Hear about what Diane calls her “beautiful chaos” in our video series with the National Fragile X Foundation
Hear about Kara’s family’s experiences and how National Fragile X Foundation has helped them make their way.
Rene shares his story about his son’s diagnosis of Fragile X syndrome and about his hope for the future.
Jessie, mother of 5 with #FragileXSyndrome, shares her experience and what she hopes the future of care looks like.
This video is a tribute to the resilience, warmth, and unwavering spirit of the Fragile X community. While the journey is not always easy, it is one rich with hope and strength in togetherness.
Many in the community already know or know of our founder, Dr. Randi Hagerman. Dr. Hagerman told a short story about how the National Fragile X Foundation came to be at this year’s NFXF International Fragile X Conference, and we want to share her story with you.
We kicked off the 19th NFXF International Fragile X Conference with an incredible keynote address from Carly Dolan, Jill Dolan, David Tillman, and Tamaro Hudson, sharing their Xtraordinary stories.
To help spread awareness of Fragile X syndrome and life as a sibling of someone living with Fragile X, Sophia James, a top-10 finalist in the 2020 season of American Idol, delivered the keynote address on the opening day of the 17th NFXF International Fragile X Conference Virtual Series.
NFXF team member Missy Zolecki shares her recent experience as a consumer reviewer for congressionally directed federal funding for Fragile X research.
All Love Threads is a fashion brand that channels the love, care, and enthusiasm of the special needs community into modern clothing designs.
Ilana Garber, a Fragile X carrier and mother of a child with Fragile X syndrome, shares her experience with Fragile X and offers her perspective to people interested in testing for themselves or their child.
This is Aaron Haugenʼs story as told by his mother and other family and friends. It starts with their quest for a diagnosis when he was a young child and goes on to showcase what’s possible.
This story about Ian Weberʼs relationship with the freshman football coach at Fairview High School in Boulder aired as part of the Denver 9NEWS franchise “Storytellers” and won the Colorado Broadcasters Award for best news feature.
American Idol featured Sophia’s relationship with her brother James, who has Fragile X syndrome. The show reached 8.05 million viewers.
Diane and her son Joshua volunteered for a clinical trial a little over a year ago. In this heartwarming video, his mom shares how their family made the decision to participate, and what the experience has been like so far.
