So many people — volunteers, team members, donors, advocates, self-advocates, clinicians and clinic teams, researchers, therapists, educators, counselors, advisors, and others — over the past 40 years have helped make the National Fragile X Foundation what it is today!
We are excited to share we have three fantastic new Board Members joining the National Fragile X Foundation this year. Join us in welcoming Jill Dolan, Michele Kaplan, and Kerry Stedke to the NFXF Board of Directors.
This is Aaron Haugenʼs story as told by his mother and other family and friends. It starts with their quest for a diagnosis when he was a young child and goes on to showcase what’s possible.
This story about Ian Weberʼs relationship with the freshman football coach at Fairview High School in Boulder aired as part of the Denver 9NEWS franchise “Storytellers” and won the Colorado Broadcasters Award for best news feature.
American Idol featured Sophia’s relationship with her brother James, who has Fragile X syndrome. The show reached 8.05 million viewers.
Dillon worked on Capitol Hill as an intern for the Committee on House Administration, chaired by Rep. Gregg Harper, whose son also has Fragile X syndrome.