July 29, 2025

The NFXF is excited to share the second video in our animated series designed to raise awareness and educate about Fragile X!

June 26, 2025

Hear about Denise’s hope for greater awareness and acceptance of Fragile X syndrome in our video series, created with Shionogi.

July 7, 2025

Moshi Moshi is hosting their 6th annual fundraiser to support the NFXF during Fragile X Awareness Month in July.

June 26, 2025

Hear about what Diane calls her “beautiful chaos” in our video series with the National Fragile X Foundation

June 26, 2025

Hear about Kara’s family’s experiences and how National Fragile X Foundation has helped them make their way.

June 26, 2025

Rene shares his story about his son’s diagnosis of Fragile X syndrome and about his hope for the future.

June 26, 2025

Ilana and Adam are dedicated to advocacy as they champion for their teenage son living with #FragileXSyndrome.

June 26, 2025

Jessie, mother of 5 with #FragileXSyndrome, shares her experience and what she hopes the future of care looks like.

November 20, 2024
02 mins read

We estimate that we only know about half of those with Fragile X. We’re on a mission to find and support every family living with Fragile X.

March 25, 2025

The NFXF is excited to share a new 90-second animated video designed to raise awareness and educate about Fragile X!

November 27, 2023
09 mins read

The most effective way to support someone living with FXS in any setting is to maximize their focus, cooperation, and enjoyment.

April 14, 2023
08 mins read

Fragile X conditions can be complicated to explain. Here we provide seven basic facts about the biology and genetics of Fragile X to help with understanding.

November 22, 2022
06 mins read

All Love Threads is a fashion brand that channels the love, care, and enthusiasm of the special needs community into modern clothing designs.

June 26, 2020

This is Aaron Haugenʼs story as told by his mother and other family and friends. It starts with their quest for a diagnosis when he was a young child and goes on to showcase what’s possible.

July 8, 2020

This story about Ian Weberʼs relationship with the freshman football coach at Fairview High School in Boulder aired as part of the Denver 9NEWS franchise “Storytellers” and won the Colorado Broadcasters Award for best news feature.