July 16, 2025

Dr. Deby Barbouth explores evidence-based lifestyle choices, mind-body techniques, and more to enhance well-being for women with the Fragile X premutation.

January 5, 2023

Dr. Randi Hagerman discusses the Fragile X-associated conditions and disorders and provides strategies for some of their characteristics.

July 18, 2024

Dr. Hessl discusses the details of a longitudinal study that examined executive functioning changes in men living with the FMR1 premutation. He describes how the study was conducted, what the results showed, why they are important, what they mean for the FX community, and the next steps to move us forward.

March 13, 2024

Our panelists share strategies to help manage the risk of developing and treating Fragile X-associated conditions and recommendations for informing and advocating for your healthcare and mental health needs with your providers. This conversation focuses on the individual living with the Fragile X premutation while also recognizing that they may be a multi-generational caregiver within their family.

September 6, 2023

Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning.

July 16, 2022

Listen to this webinar to learn more from our esteemed panelists about Fragile X and Associated Tremor Ataxia Syndrome FXTAS.

July 14, 2022

Each of the panelists answer questions from their experiential perspectives on topics related to the Fragile X premutation, including FXTAS, FXPOI, and other emerging areas of concern.

June 24, 2021

Anne Wheeler, PhD discusses how mothers of children with Fragile X syndrome may experience increased vulnerability to stress due to their premutation status.

November 20, 2020

Emily Allen discusses some of the health concerns of women who are FMR1 premutation carriers.

June 28, 2020

When you or someone in your family is told you are a “carrier” for a Fragile X mutation, many questions arise. The expert panel helps answer what it means for your health, your family, and your future.

June 27, 2020

Panelists discuss their recommendations for women at high risk to consider earlier childbearing or methods of fertility preservation, such as egg (oocyte) or embryo freezing.

February 1, 2017

Our very own founder, Dr. Randi Hagerman of the UC Davis MIND Institute, joins us to discuss issues in Fragile X premutation carriers.