The NFXF joined researchers and clinicians at the 6th International Conference on Fragile X Premutation Associated Conditions in Italy to advance understanding of FXTAS, FXPOI, and related conditions, update treatment recommendations, and strengthen global Fragile X collaboration.
Dr. Deby Barbouth explores evidence-based lifestyle choices, mind-body techniques, and more to enhance well-being for women with the Fragile X premutation.
Dr. Randi Hagerman discusses the Fragile X-associated conditions and disorders and provides strategies for some of their characteristics.
Dr. Hessl discusses the details of a longitudinal study that examined executive functioning changes in men living with the FMR1 premutation. He describes how the study was conducted, what the results showed, why they are important, what they mean for the FX community, and the next steps to move us forward.
Our panelists share strategies to help manage the risk of developing and treating Fragile X-associated conditions and recommendations for informing and advocating for your healthcare and mental health needs with your providers. This conversation focuses on the individual living with the Fragile X premutation while also recognizing that they may be a multi-generational caregiver within their family.
Reproductive health is a broad topic, covering the physical and emotional components of areas like puberty, sexuality, reproductive options, and family planning.
Listen to this webinar to learn more from our esteemed panelists about Fragile X and Associated Tremor Ataxia Syndrome FXTAS.
Each of the panelists answer questions from their experiential perspectives on topics related to the Fragile X premutation, including FXTAS, FXPOI, and other emerging areas of concern.
Anne Wheeler, PhD discusses how mothers of children with Fragile X syndrome may experience increased vulnerability to stress due to their premutation status.
Emily Allen discusses some of the health concerns of women who are FMR1 premutation carriers.
When you or someone in your family is told you are a “carrier” for a Fragile X mutation, many questions arise. The expert panel helps answer what it means for your health, your family, and your future.
Panelists discuss their recommendations for women at high risk to consider earlier childbearing or methods of fertility preservation, such as egg (oocyte) or embryo freezing.
Our very own founder, Dr. Randi Hagerman of the UC Davis MIND Institute, joins us to discuss issues in Fragile X premutation carriers.