August 14, 2024
06 mins read

Our 2024 NFXF awards are in! Learn more about each award and the respective awardees.

July 30, 2020

To help spread awareness of Fragile X syndrome and life as a sibling of someone living with Fragile X, Sophia James, a top-10 finalist in the 2020 season of American Idol, delivered the keynote address on the opening day of the 17th NFXF International Fragile X Conference Virtual Series.

May 1, 2024
07 mins read

In the early years, attendance was considered great if a few hundred showed up. Nowadays, three to four times that number is the norm!

July 7, 2023
10 mins read

More research is needed to better understand the progression of FMRP expression across the lifespan and how FMRP is related to all aspects of functioning.

July 7, 2023
12 mins read

At the NFXF’s 18th International Fragile X Conference, we heard insightful discussion regarding the FMR1 premutation from four highly regarded experts whose backgrounds span a diverse range of fields including psychiatry, neurology, basic science, and reproductive biology. Chaired by Hilary Rosselot, questions put forward from the in-person and virtual audiences were discussed and debated by Drs. Randi Hagerman, Deborah Hall, David Hessl, and Emily Allen.