July 22, 2025

We’re thrilled to spotlight a major new review article recently published in the New England Journal of Medicine (NEJM) – The Spectrum of Fragile X Disorders by Randi J. Hagerman and Paul J. Hagerman.

October 8, 2024

October is a time that draws the attention of the nation on critical issues related to disability employment, bringing awareness to a subject that we know has importance all year round. We know many individuals living with Fragile X want to work and though some do, not everyone who wants a job has found one that best fits their strengths and skillsets. We’re determined to help you educate yourself on the supports that exist and how to best advocate in the workplace.

February 5, 2025
03 mins read

We understand the uncertainty surrounding recent developments, especially potential changes to federal funding that could impact the Fragile X community. We closely monitor the situation and continue working with our strategic partners to stay informed.

February 10, 2025
05 mins read

We are seeing numerous proposed changes this Congress that would have a significant impact on the Fragile X community. It’s more important than ever that your members of Congress hear directly from you — your voice matters.

May 12, 2020
02 mins read

American Idol featured Sophia’s relationship with her brother James, who has Fragile X syndrome. The show reached 8.05 million viewers.