July 16, 2025

Dr. Deby Barbouth explores evidence-based lifestyle choices, mind-body techniques, and more to enhance well-being for women with the Fragile X premutation.

July 16, 2025

Rebecca Shaffer leads two presentations about how to stay calm and manage intense emotions. The first is for self-advocates, and the second is for caregivers of individuals with Fragile X syndrome.

November 6, 2024

The multidisciplinary panel discussed the unique experiences and support needs of females living with Fragile X syndrome. While females may sometimes exhibit fewer overt support needs, they can be as significantly affected as males. This complexity highlights the necessity for individualized approaches to support and intervention.

December 13, 2023

The webinar was a facilitated one-hour Q&A session covering a wide-range of topics. The panelists shared recommendations and information during the discussion, each from their own professional perspectives.

July 15, 2022

This presentation focuses on signs of emotion dysregulation in Fragile X syndrome and ways to respond including practical strategies and an Emotion Regulation Toolkit to download.

November 20, 2020

Emily Allen discusses some of the health concerns of women who are FMR1 premutation carriers.