The Hermidas

What makes the Hermidas family Xtraordinary to you?

Fragile X brought our two families together as we each have boys the same age impacted by Fragile X syndrome. The comfort of being able to laugh and cry with this family has led to a lifelong friendship despite now living thousands of miles from one another.

How has the NFXF helped you and your family?

NFXF’s online support networks helped lessen the impact of feeling so isolated and alone, which is often the case with a rare disorder diagnosis.