NFXF chapters are officially affiliated with the NFXF in support of our mission to provide unwavering support for every family affected by Fragile X. Support includes providing educational and awareness opportunities, fundraising, and supporting the NFXF mission. Check out some of our event recaps.
Community partners are independent, tax-exempt organizations that collaborate with the NFXF to support the Fragile X community, raise awareness, and offer educational opportunities to families in their geographic area. These groups are primarily run by volunteer parents and are not formally affiliated with the NFXF.
Community contacts are dedicated volunteers who are available to answer questions and provide educational and emotional support, especially to those with newly diagnosed children. Their email addresses are provided here to get the conversation started.
If you or one of your siblings is living with Fragile X and would like to join a group of like-minded individuals, this group is for you! This group is not part of the search tool on this page, but please contact sibselfrl@fragilex.org or visit the Sibling & Self-Advocate Network Facebook page to join or learn more.
Find Support Near You
Search by your location to find the nearest community chapter, partner, or contact. You can also choose by state, but keep in mind that many chapters cover multiple states. Results will be sorted from nearest to farthest.
