Join us as we host Drs. Emily Allen, Craig Erickson, Peng Jin, David Nelson, and Peter Todd, in addition to NIH representative Dr. Kathleen Huntzkicker, for a discussion on research in Fragile X.
Join the Sibling and Self-Advocate Network (SSAN) for their next Zoom session as they dive into the power of advocacy. Our voices matter, and you can make a difference! They’ll kick off [...]
Join us for the NFXF Advocacy Day 2025. This annual in-person event will bring together families, self-advocates, siblings, caregivers, doctors, and researcher who are a collective voice dedicated to elevating awareness, educating, and showcasing actionable ways to support the Fragile X community.
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Feel free to join the chat whenever works for you and stay for as long as you'd like! [...]
Join the Sibling and Self-Advocate Network (SSAN) and get ready for some fun at their March Madness Zoom! They’ll kick things off with some energizing music, play trivia, and catch up with [...]
Join the NFXF Western Mass Chapter for the 9th Annual Hadley Cornhole Championship fun-filled Corn Hole Competition! Teams of two will compete in a double-elimination tournament for a chance to win prizes and claim [...]
Join the NFXF on April 1, 2025 as they host a panel of genetic counselors who specialize in Fragile X in their webinar series. Susan Howell, Rena Pressman, Marisa Volvos, and trainee Kate Shelley will address the intricacies of the genetics of Fragile X.
Join caregivers, siblings, and self-advocates (ages 16 and up, male and female) from Rhode Island and the surrounding areas for a night out!
Join the NFXF Connecticut Chapter for a Virtual Fragile X Dad's Chat – All Dads Welcome! Although our meetings are always open discussion with no particular topic, this month we will have 2 special [...]
Join the NFXF on May 13, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a webinar and panel discussion on special needs financial planning.
Ride With Us! Charity bicycle ride to benefit the National Fragile X Foundation, Heartland Chapter, which supports families affected by Fragile X Syndrome in Iowa and South Dakota. Event Details Date: Saturday, June 7, [...]
Please join us Saturday, July 12th at Cincinnati Children's Hospital for the 2025 Cincinnati Fragile X Family Conference! Top experts will be presenting on a broad range of topics. Topics include, but are not [...]
Join the NFXF on August 5, 2025 as they host Kelly Piacenti of MassMutual SpecialCare and Jerry Hulick of The Washington Group Special Care Planning Team for a workshop on creating a letter of intent and how it supports special needs planning by guiding future caregivers with clear care instructions.
