Children’s Hospital of Philadelphia New Member of the FXCRC
By Kristin Bogart
We are thrilled to announce the addition of Children’s Hospital of Philadelphia (CHOP) to the NFXF’s Fragile X Clinical & Research Consortium (FXCRC). The clinic is being run by Dr. Amanda Bennett who previously provided medical consultation and services to those utilizing the former Fragile X clinic in Elwyn, PA. Dr. Bennett is a developmental pediatrician and will see patients from birth to age 18. As a member of the FXCRC, Dr. Bennett and her team will benefit from the communication with, and the expertise of, the 40+ U.S. and international clinics that belong to the FXCRC.
As is the case for all FXCRC clinics, medical, including medication, evaluation is a core component of the clinic and families will be able to carry home Fragile X-specific treatment recommendations to their primary care provider as well as their child’s educators and therapists. In addition, various other services are provided directly by the clinic or through referral on an as-needed basis. Those services include assistance with transitioning to adult care.
Learn more about this and all other FXCRC clinics at Find a Fragile X Clinic Near You | Resources for Families
author
Kristin Bogart
Kristin joined the NFXF team in 2019. She has over 20 years of experience in fundraising and non-profit management, event planning, and board and volunteer development. She earned a bachelor’s degree in economics and a master’s in public administration. Kristin loves spending time with her two teenage sons and in the company of friends, and enjoys gardening, running, and hiking in the Santa Cruz mountains.