NFXF Blog

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August 13, 2025
01 min read

On Tuesday, July 22, the Rhode Island State House held a special lighting called Lighting the Way for Fragile X in honor of National Fragile X Awareness Day. And, of course, all of the Little Rhody Warriors were there!

July 22, 2025

We’re thrilled to spotlight a major new review article recently published in the New England Journal of Medicine (NEJM) – The Spectrum of Fragile X Disorders by Randi J. Hagerman and Paul J. Hagerman.

July 16, 2025
05 mins read

The Belonging Project aims to intentionally extend our reach to underserved and underrepresented communities across the United States. We have 2025 updates from three Fragile X clinics and our belongingness survey, and we will keep you updated as we continue to move forward.

July 7, 2025

Moshi Moshi is hosting their 6th annual fundraiser to support the NFXF during Fragile X Awareness Month in July.

June 17, 2025
10 mins read

Nancy Carlson and the NFXF Heartland Chapter — Iowa and South Dakota hosted their 10th Annual Bike To X Out Fragile X on Saturday, June 7, 2025, in Des Moines, Iowa.

June 6, 2025

Action Alert: Help protect Medicaid, a program that provides healthcare coverage and support services for individuals, including those in the Fragile X community.

May 21, 2025

We’re on a mission to enroll 600 participants with FXS born in 2003 through 2020. We’re halfway there and we need your help!

May 21, 2025
03 mins read

Announcing FY 2025 federal research funding opportunities across two award categories available for all Fragile X-associated conditions and disorders.

May 20, 2025

Little Rhody Warriors families held their second annual “Fragile X Awareness Walk” on May 18 in Warwick, Rhode Island. More than 50 family members, caregivers, and friends participated in this X Strides event.