April 1, 2020

In this webinar, Rebecca Shaffer walks us through what your child tells you, strategies to prevent the behavior, reinforce good behaviors, and build new skills.

July 17, 2022

Discover findings from a survey of 33 parents of kids with Fragile X syndrome, exploring the COVID-19 pandemic’s impact on education, therapies, behavior, and more.

May 8, 2020

Dr. Marcia Braden asked females living with Fragile X syndrome to give advice to other females living with FXS on how to cope with the pandemic — and all crises.

April 22, 2020

Barbara Haas-Givler, BCBA, shares thoughts, tips, and methods for caregivers to support their child with Fragile X syndrome.

April 7, 2020

Dr. Rebecca Shaffer joins us to give advice and tips on developing play skills with your children with Fragile X syndrome.

March 25, 2020

Rebecca Schaffer, PsyD, walks parents and caregivers through how to keep a routine around the home, especially during COVID-19. But, it is timeless advice.

March 13, 2020
10 mins read

The same thing you do every other day, except, at least initially, it will be more like a weekend day. Some of the strategies you use when you go on vacation can used here. Trust me, I know this is not a vacation.

July 17, 2013
06 mins read

[This is an archived page referring to the Seaside Arbaclofen (STX209) clinical trial, which was terminated in 2013.] We have experienced a setback with the cancellation of the extension phase of the STX209 drug trials for Fragile X syndrome, and what have been deemed the technical failures of two other ongoing trials of this drug.

May 18, 2013
02 mins read

[This is an archived page referring to the Seaside Arbaclofen (STX209) clinical trial, which was terminated in 2013.] By now, many of you have heard that Seaside Therapeutics has decided to end the extension of the trial medication Arbaclofen (STX209).