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For over 20 years, advocates have joined voices promoting Fragile X awareness, advocating for Fragile X research funding and legislation that will improve the lives of those impacted by Fragile X.
This newsletter shares information about our 21st NFXF Advocacy Day (February 2025), the legislation we support and monitor, RARE Across America 2024, and more.
Read the Fragile X Advocacy Newsletter — October 2024
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Staying Focused on Fragile X Advocacy
Fragile X advocacy involves sharing your experiences, including your challenges, and proposing meaningful ways to support the Fragile X community with your Members of Congress. The current political landscape can make it difficult to stay focused on our goals of improving lives and creating opportunities for the entire Fragile X community, but we know you can do it!
The NFXF is committed to advancing advocacy priorities, initiatives, and “Asks.” Fragile X advocacy is non-partisan, and the progress made over the past 20 years is thanks to dedicated advocates who have shared their successes and challenges. We will continue to be a consistent voice in this important space.
Remember, every interaction counts, and your voice matters! Keep up the great work advocating for Fragile X.
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Learn more about NFXF Advocacy.
Thank you for advocating! YOU are making a difference!
Save the Date!
We hope you will join us for the next NFXF Advocacy Day in Washington, D.C.
