NFXF Webinar Series

An Unregulated Life is No Laughing Matter

00 h 16 m

Tracy Stackhouse discusses the importance of self-regulation in individuals with Fragile X syndrome, including tools, safety, and connection.

About the Webinar

With Tracy Stackhouse
Learn more about the presenters

In many ways, FXS is a disorder of regulation. This is true because of the missing FMRP in the brain, and the systems that regulate are disrupted. Yet, we can acquire the ability to self-regulate.

To help someone else with their dysregulation, you must be regulated yourself. This means being committed to and maintaining self-regulation. Individuals with FXS learn by seeing and engaging through modeling and visual structure.

This was originally presented in response to the COVID-19 pandemic, but it applies to all situations.

About the Presenter

Tracy Stackhouse

Tracy Stackhouse

Developmental FX
Co-founder, Executive Director

Tracy Stackhouse, MA, OTR, is co-founder and executive director of Developmental FX in Denver, Colorado. She is a leading pediatric occupational therapist involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X syndrome and autism. Tracy has a master’s in developmental psychology/neuroscience. She received her NDT (neuro-developmental treatment) training with Lois Bly. She is SIPT (Sensory Integration and Praxis Tests) certified and was the clinical specialist in sensory integration at the Children’s Hospital in Denver as well as the OT for the Fragile X Research and Treatment Center. Tracy continued her clinical and research work with Dr. Randi Hagerman at the UC Davis MIND Institute during its start-up year prior to starting Developmental FX.

Tracy has written several book chapters on sensory integration and neurodevelopmental disorders and teaches nationally and internationally on sensory integration, autism, Fragile X, and related topics. She is the lead author for the SpIRiT and STEPSI Clinical Reasoning Tools which are leading-edge evidence-based models in pediatric occupational therapy. Tracy is also a member of the Fragile X Clinical & Research Consortium and the NFXF Advisory Committee.