Reproductive Health Discussion
During the webinar, Hilary Rosselot, NFXF executive director, facilitated a one-hour Q&A covering a wide range of topics. The panelists shared resources and information while discussing the following topics:
- Puberty can be a confusing and challenging time. Identifying resources (such as books, pictures, and videos) that can be helpful when discussing the feelings and emotions an individual may be experiencing as their body starts to transition into adulthood.
- Genetic screening and testing options for individuals who are considering expanding their family.
- FXPOI and other potential health implications and interventions women with the Fragile X premutation may consider discussing with their healthcare provider.
- Reproductive options for individuals who are seeking to grow their family.
- Factors to discuss if contraception is an option that you or your family may be considering. Note: We understand contraception is not for everyone. If you are not interested or do not believe in the use of contraception, feel free to fast-forward the webinar while this topic is being discussed.
Additional Resources
You may also be interested in these additional resources mentioned during the webinar.
About the Presenters
Heather Hipp
Heather Hipp, MD, is an associate professor at the Emory University School of Medicine and works at the Emory Reproductive Center caring for patients with reproductive endocrine disorders and infertility.
Dr. Hipp helped author the recent Fragile X Clinical & Research Consortium guidelines for FXPOI (Fragile X-associated primary ovarian insufficiency). Dr. Hipp is board certified in obstetrics and gynecology (OB-GYN) and reproductive endocrinology and infertility (REI). She maintains a special clinical interest in women with primary ovarian insufficiency (POI), working to care for their overall health and reproductive needs. She currently serves as the subspecialty resident educator for the REI rotation, is the program director for the REI fellowship, and is the director for the Emory Egg Bank. Dr. Hipp is also an advisor in the NFXF’s Research Readiness Program.
Dr. Hipp graduated from Duke University with double majors in biology and English and then matriculated at Emory University for her doctorate and graduated cum laude. She stayed at Emory for her residency in gynecology and obstetrics, where she served as administrative chief resident for her final year and her fellowship in reproductive endocrinology and infertility. During her fellowship in REI, she worked with Emory’s National Fragile X Center on ongoing analysis of genetic modifiers of POI in women with the Fragile X premutation.
Vicki Wilkins
Vicki Wilkins, MD, is a pediatric hospitalist at the University of Utah who specializes in provider-family communication, experience of care, and care for children with complex healthcare conditions. She has a son with Fragile X syndrome and has therefore developed a Fragile X practice and research portfolio. She trains and coaches physicians, nurses, and other healthcare providers in engaging in difficult conversations, conflict resolution, disclosure and resolution of adverse events, and shared decision-making. She is the medical director of experience of care at Primary Children’s Hospital in Salt Lake City, Utah. Dr. Wilkins is an NFXF board member and advisor.
