Video

One Fragile X Experience: Carrier & Mom Answers FAQs

November 15, 2022

00 h 13 m

Ilana Garber, a Fragile X carrier and mother of a child with Fragile X syndrome, shares her experience with Fragile X and offers her perspective to people interested in testing for themselves or their child. She covers Fragile X-associated primary ovarian insufficiency (FXPOI), learning from the internet, finding community, and what she wished she would have known when her son was diagnosed.

About the Webinar

Ilana Garber
Learn more about the presenters

Thank you, Ilana, for speaking about your experience in a way that honors your son in such a beautiful, authentic way.

Thank you to NFXF Corporate Sponsor for 2022 Asuragen  for creating this important awareness project. Learn more about Asuragen’s work in Fragile X at DiscoverFragileX.

About the Speaker

Ilana Garber

Ilana Garber is a Fragile X carrier and mother of a child with Fragile X syndrome.

Moderated By

Kristin Bogart

Kristin joined the NFXF team in 2019. She has over 25 years of experience in fundraising and non-profit management, event planning, and board and volunteer development. She earned a bachelor’s degree in economics and a master’s in public administration. Kristin loves spending time with her two adult sons, playing tennis, and hiking in the Santa Cruz mountains on the California coast.

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